New study opportunity for individuals impacted by Nephrotic Syndrome 

Participation in a 1-hour interview could help researchers get one step closer to finding new therapies for Nephrotic Syndrome and other rare kidney diseases

Mother and Daughter

Do you or someone you know have Nephrotic Syndrome or related kidney disease such as Minimal Change Disease, FSGS, IgM Nephropathy, or Membranous Nephropathy?

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Please consider participating in a 1-hour long interview with the Prepare-NS research study.

Researchers from the University of Michigan and Northwestern University are studying people's experiences with swelling, or edema, and want to learn from those impacted by Nephrotic Syndrome. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome. 

What is involved? 

  • A one-hour long phone or Zoom interview, to discuss your or your child's experiences with swelling  

  • Receive $50 after the interview. 

Who can participate?

Group 1: Parents or caregivers of children with Nephrotic Syndrome 

  • Parent or guardian must be at least 18 years old 

  • Must be able to read and understand English

  • Caring for a child aged 2-11 years with a diagnosis of Nephrotic Syndrome or specific kidney disease that causes nephrotic syndrome such as Minimal change Disease, FSGS, IgM Nephropathy, or Membranous Nephropathy

  • Their child must have current swelling or a history of swelling within the past 3 months

  • Their child must not be receiving dialysis

Group 2: People with Nephrotic Syndrome 

  • At least 8 years old 

  • Must be able to read and understand English

  • Have a diagnosis of Nephrotic Syndrome or specific kidney disease that causes nephrotic syndrome such as Minimal change Disease, FSGS, IgM Nephropathy, or Membranous Nephropathy

  • Must have current swelling or experienced swelling within the past 3 months 

  • Must not be receiving dialysis

 

Your participation in the Prepare-NS interview study could help researchers get one step closer to finding new therapies for Nephrotic Syndrome! 

The study is sponsored by the U.S. Food and Drug Administration and has been approved by The University of Michigan Institutional Review Board HUM00212827. 

Interested?  Complete the form below!

Phone

734-232-4830

Email

Thanks for submitting! A member of our research team will be in touch soon.