Please consider participating in the Prepare-NS research study.

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Researchers are studying people's experiences with swelling (edema), and want to learn from those impacted by Nephrotic Syndrome. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome. 

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What is involved? 

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• Complete three surveys about your (or your child's) swelling.

  • One at enrollment, one three months later, and one nine months after enrollment

  • Possibly one blood draw

• Complete daily/weekly short surveys via a mobile app

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Who can participate?

• People (8 or older) with nephrotic syndrome who currently have swelling

                     OR

• Caregivers of children with nephrotic syndrome who currently have swelling​

• Other qualifications:

  • Confirmed diagnosis of Minimal Change Disease, FSGS, IgM Nephropathy, or Membranous Nephropathy 

  • Not currently receiving dialysis

  • No history of kidney transplant

  • Speak/understand English

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How will I be compensated?

• $50/main survey or visit (up to $150)

• Up to $136 for daily/weekly followup short surveys

 

Your participation in the Prepare-NS interview study could help researchers get one step closer to finding new therapies for Nephrotic Syndrome! 

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The study is sponsored by the U.S. Food and Drug Administration and has been approved by The University of Michigan Institutional Review Board HUM00250221. This study is conducted by the University of Michigan and Northwestern University.