Get Involved!
Do you or someone you know have swelling from kidney disease?
Participation in a virtual or phone 1-hour paid interview could help researchers get one step closer to finding new therapies for Nephrotic Syndrome before or after kidney transplant. Eligible diseases include FSGS, Membranous Nephropathy, Minimal Change Disease, IgM, or C1q nephropathy.

Let's Make A Change
Please consider participating in a virtual 1-hour long interview with the Prepare-NS research study.
Researchers are studying people's experiences with swelling, or edema, and want to learn from those impacted by Nephrotic Syndrome. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome.
What is involved?
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A virtual one-hour long phone or Zoom interview, to discuss your or your child's experiences with swelling
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Receive $50 after the interview.
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People with nephrotic syndrome who have had swelling in the past 3 months
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Caregivers of children with nephrotic syndrome who have had swelling in the past 3 months
The study is sponsored by the U.S. Food and Drug Administration and has been approved by The University of Michigan Institutional Review Board HUM00212827. This study is conducted by the University of Michigan and Northwestern University.