Get Involved! 

Do you or someone you know have swelling from kidney disease?

Participation in a virtual 1-hour paid interview could help researchers get one step closer to finding new therapies for Nephrotic Syndrome before/after kidney transplant. Eligible diseases include FSGS, Membranous Nephropathy, Minimal Change Disease, IgM, or C1q nephropathy. 

Let's Make A Change

Please consider participating in a virtual 1-hour long interview with the Prepare-NS research study.

Researchers are studying people's experiences with swelling, or edema, and want to learn from those impacted by Nephrotic Syndrome. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome. 

What is involved? 

  • A virtual one-hour long phone or Zoom interview, to discuss your or your child's experiences with swelling  

  • Receive $50 after the interview. 

Who can participate?

 

Your participation in the Prepare-NS interview study could help researchers get one step closer to finding new therapies for Nephrotic Syndrome! 

The study is sponsored by the U.S. Food and Drug Administration and has been approved by The University of Michigan Institutional Review Board HUM00212827. This study is conducted by the University of Michigan and Northwestern University. 

Interested?  Complete the form below!

Phone

734-232-4830

Email

Thanks for submitting! A member of our research team will be in touch soon.
 

Eligibility Criteria

Group 1: Caregivers of children with nephrotic syndrome


1. Parent/guardians must be at least 18 years old
2. Must be able to read and understand English.
3. Are caring for a child aged 2-11 years with a
diagnosis of Nephrotic Syndrome or a specific kidney
disease that causes Nephrotic Syndrome, such as
Minimal Change Disease, FSGS, IgM Nephropathy, or
Membranous Nephropathy.
4. Their child must have current swelling or a history of
swelling within the past 3 months.
5. Their child must not be receiving dialysis.

Group 2: People with nephrotic syndrome


1. At least 8 years old
2. Are able to read and understand English.
3. Have a diagnosis of Nephrotic Syndrome or a
specific kidney disease that causes Nephrotic
Syndrome, such as Minimal Change Disease, FSGS,
IgM Nephropathy, or Membranous Nephropathy.
4. Must have current swelling or a experienced
swelling within the past 3 months.
5. Must not be receiving dialysis.