Please consider participating in the Prepare-NS research study.

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Researchers are studying people's experiences with swelling (edema) and want to learn from those impacted by Nephrotic Syndrome. The information collected from the study will be used to validate a survey to use when testing new medications for Nephrotic Syndrome. 

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What is involved? 

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• Complete three surveys about your (or your child's) swelling.

  • One at enrollment, one three months later, and one nine months after enrollment

  • Possibly one blood draw at enrollment (if recent labs unavailable)

• OPTIONAL: Complete short, daily surveys via a mobile app at defined timepoints

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Who can participate?

• People (aged 8 years or older) with Nephrotic Syndrome who currently have swelling

                     OR

• Caregivers of children aged 2-11 years old with Nephrotic Syndrome who currently have swelling​

• Other qualifications:

  • Confirmed diagnosis of Minimal Change Disease, FSGS, IgM Nephropathy, or Membranous Nephropathy

  • Not currently receiving dialysis

  • No history of kidney transplant

  • Speak/understand English

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How will I be compensated?

• $50 for enrollment, $60 for 3-month follow up, and $75 for 9-month follow up 

• Up to $21 for short, daily surveys at enrollment, 3-month follow up, and 9-month follow up (OPTIONAL)

 

Your participation in the Prepare-NS study could help researchers get one step closer to finding new therapies for Nephrotic Syndrome! 

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The study is sponsored by the U.S. Food and Drug Administration and has been approved by The University of Michigan Institutional Review Board HUM00250221. This study is conducted by the University of Michigan and Northwestern University.