Articles & Talks
Prepare-NS shares information about the study with vigorous outreach and publishing. See posters and presentation and article links below.
2023 Pediatric Academic Societies Meeting
The Prepare-NS team presented on how they approached developing an observer-reported outcome (ObsRO) of fluid overload (edema) in nephrotic syndrome for use in drug development.
2023 American Society of Nephrology Meeting
The Prepare-NS team presented on how they approached developing a patient-reported outcome (PRO) of fluid overload (edema) in nephrotic syndrome for use in drug development.
2022 American Society of Nephrology Meeting
The Prepare-NS team presented on how they approached developing a patient-reported outcome (PRO) of fluid overload (edema) in nephrotic syndrome for use in drug development.
January 2024 IS-GD Webinar:
Are You Prepared for Prepare-NS?
This International Society of Glomerular Disease webinar provides background patient-focused drug development and the pioneering efforts of the FDA-funded Prepare-NS study, which is focused on the development of patient-reported and caregiver-reported questionnaires to measure impacts of edema. The panel includes firsthand descriptions of lived experience with edema as a patient, alongside commentary from experts in pediatric and adult nephrology and patient-focused drug development.
Panelists include: Devin Peipert, PhD, Assistant Professor, Northwestern University; Seferiana Day, MSW (patient); Barbara S. Gillespie, MD, FASN, VP/Therapeutic Head of Nephrology, Fortrea; Eloise Salmon, MD, Clinical Assistant Professor, University of Michigan Pediatric Nephrology